Useful Links

On this page you will find many other useful links of other associations that work and fight the disease to help improve the lives not only of people with the disease, but also of their families.

Orphanet

http://www.orphanet-italia.it/

Malattie rare

https://www.salute.gov.it/malattierare

Centro nazionale malattie rare

https://www.iss.it/centro-nazionale-per-le-malattie-rare

Telethon

https://www.telethon.it/

UILDM

https://www.uildm.org/

Fondo DMD

https://www.fondodmd.org/

Parent Project

https://parentproject.it/

Associazione beta sarcoglicanopatie

https://www.beta-sarcoglicanopatie.it/

Associazione mitofusina 2

https://progettomitofusina2.com/

Associazione Phelan McDermid

https://www.aisphem.it/

MDA Muscular Dystrophy Association

https://www.mda.org/

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